On August 18th, 111 days after Avery passed away, her parents were informed that the goal of accumulating one million dollars to fully fund the Phase 1 clinical trials of Dr. Kaspar's Gene Therapy program to cure those with Spinal Muscular Atrophy (SMA-- also remembered as 'Shoulda missed Avery'). It is thought that the trials will begin in the beginning of 2013.
Avery's bucket list noted that after the one mill mark was met, she wanted to do it again and again. So, please, when you get a chance, do not for get to give a little something to the SMA Gene Therapy Program. You can find a link to it at Avery's Bucket List blog (see the link on the left side of this page).
Thank you for anything you can give to eradicate this horrible disease which has taken such beautiful children from us too soon.
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